popeye
...feeling frustrated popeye @el1

Itch

Has any ione else been unable to get onto this page !! I have not been able to get on here for weeks have changed my password etc and have asked for my new password but no reponse !!!

6

Please don't include specific medical product brand names or external links.

6 responses

Kay
Kay @nuggetsmcr

I think the owners of the website have abandoned us. I tryed emailing and messaging but getting nothing back.


Rosey
Rosey @sue2023

Same problem, but not going to reinstate as have reminders from the past


James
James @ferns

I hope I’m wrong but I wonder. This site / forum was set up by one of the drug companies, that’s why we weren’t allowed to mention brand name drugs. I assume their main purpose was to gather information from us as people affected by P. That’s okay with me, a fair trade. However, could it be they have all the data they want and as you say Kay, have simply walked away.


Kay
Kay @nuggetsmcr

Its a possibility for sure, bit of a dick move to be honest. Pass the ownership onto someone who would keep the site maintained atleast.


Rosey
Rosey @sue2023

Yes us people need people that have this condition, no one in my world understands it or has it, so this site is unique and a godsend to us


Barry
Barry @barry59

I haven’t received mail from Flaym for months. Thought maybe the booted me out.



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popeye
popeye @el1
London, UK



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